It’s been WAY too long since I’ve been to see any doctors (negligence on my dad’s part and on the people I rely on for transportation). The neurologist that I was seeing for a year was only a resident, so she left and naturally she’s not around to refill my rescue medication anymore, so I’ve been panicking-rationing it for the last year lol. One of the admins put in a good word for me and got the... » Continue Reading
Well damn, I forgot I had an account on here. *blows dust off keyboard* The bad news is that my health hasn't gotten any better, and the worse news is that it's actually gotten worse. Since I'm pretty much starting over (unfriended most of the ppl on my list since I didn't recognize ANY of them lol), and I never really gave a full backstory, just little updates... I'll give y'all the full rundown.... » Continue Reading
So, a couple months ago I started suddenly getting absolutely SLAMMED with ads for this "Temu". They were EVERYWHERE -- Facebook, Instagram, Twitter, Amazon, whatever. I would see videos on TikTok of all kinds of home gadgets from Temu. BUT, I also saw a lot of people saying not to trust Temu, and that they "steal your information" and their packages never arrived... yikes. So I decided to see wh... » Continue Reading
Saw the neurologist again for another follow-up, she officially diagnosed me with migraines (as if we didn't already know that smh). However she refused to discuss ANY of the bloodwork results because she technically wasn't the one who ordered them... grr. She told me to see my primary doc and the endocrinologist and talk to them about the bloodwork. So the appointment was basically a waste of tim... » Continue Reading
I finally had the energy to do some self-care. I showered, did my skincare routine for the first time in WEEKS, had a nice cup of tea with honey and then I painted :) It was nice. Also, I remembered another thing I'm grateful for -- the sound of the paintbrush on canvas. It's so satisfying it itches my brain quite nicely lol » Continue Reading
As the title says, the last two results came back. They came back normal. But what I want to rant a little about is that we actually found out that when my GI doc had me do bloodwork TWO YEARS AGO, several of my markers came back abnormal, and NOBODY thought to say anything to us. Past blood results show that those abnormalities have been steadily becoming more severe over the past two years. In m... » Continue Reading
Hey guys, thought I'd give a quick update. On Wednesday I saw a neurosurgeon for a consult, and got blood drawn for lots of different tests. The consult went pretty well and it was quick; he looked over my MRI results and said he doesn't think my main issues are caused by the Chiari malformation! This is actually VERY good news; it means that extensive and painful brain surgery is off the table. P... » Continue Reading
1. My mom, she takes great care of me especially lately when I need help even with simple daily tasks. She works hard despite her own health issues. 2. My cat, she's become very attached to me and I really feel we have an empathic connection 3. My ability to create art. I don't know what I would do if I were unable to draw -- I think I'd go crazy. 4. The person in Germany who bought my stickers. T... » Continue Reading
Happy New Year everybody! I'm hoping 2023 will be the year of answers and solutions for me, lol. I FINALLY had the tilt-table test done; it took forever to find a location close enough that had the actual table equipment. Apparently my results are normal, and I don't have POTS -- this came as a shock to both me and my mom, since I have a cousin with POTS and our symptoms are nearly identical. The ... » Continue Reading
In light of my last post I've decided I'm going to make an effort to post things that made me happy/things that I'm grateful for, even if they're little or stupid. Art makes me happy. I opened a RedBubble shop in February and just last week I got my first sale! Someone from Germany bought 2 of my stickers! :) FYI if you want to check out my RedBubble, here's the link, I have over 180 designs on th... » Continue Reading
1. what is your favorite type of weather? --Rainy or stormy -- I love sitting outside during an afternoon thunder storm (as long as it's not raining TOO hard) » Continue Reading
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