For as long as I can remember I've always had a minor issue with my joints being weak and getting stiff and painful sometimes but it's never really been that big of a deal. Well I also have a habit of downplaying everything cuz of the way I was raised I guess so I'm very used to simply dealing with suffering bc I don't believe it's really suffering but like in the past it genuinely wasn't that big of a deal. It's been getting sooooooo bad recently. As I've gotten older flareups have become more severe (causing me to limp or refrain from usual activities bc of pain) but those flareups were so far flung between I still didn't think much of it. Now in recent months the flareups are severe AND frequent so like wtf?? I even got some braces for my wrists and knees and a posture brace to help my back and shoulders. They kinda help but it's not really a fix, esp for my knees, I had both knee braces on and still felt like I couldn't make it down the stairs a few days ago. But like after that I spent a consecutive 2 days trying to do absolutely nothing to ease the tension on my knees and it only helped a little, then I took a pole class yesterday and now I feel perfect like brand new. AND THAT'S HOW EVERY WEEK GOES FOR THE LAST MONTH. WHAT IS THAT??? I was worried I'd have to stop pole but somehow pole usually makes it feel better. However, I did have to stop taking my flexibility classes bc that actually fucked up my knees so badly last time I went. It really sucks I liked those classes and I want to keep training my flexibility! :(( I'm trying to figure out what specific movements are helping vs hurting cuz it's kinda weird that some exercise is good but some is bad and I'm very new to exercising as a whole (I was NOT an active child) so idrk how to tell the difference. A lil while ago the doctor who diagnosed me with autism started bringing up hEDS cuz apparently that's commonly comorbid with autism. She told me she was gonna put in an order for a genetic test and then disappeared off the face of the Earth but I presume it's just slow bc of the holidays or smth. I'm skeptical abt it being EDS bc the only symptoms I show are the hypermobile ones but she says she thinks it's bc I'm so young and I didn't do much as a kid so I just kinda skipped past the more extreme symptoms like prolapses and dislocations and stuff. I mean that is fully possible so that's why I opted for the test since it's definitive. At the very least we've both determined that I'm definitely hypermobile and I guess that can cause problems. I'd never heard of it as a proper medical term before I just heard people use it to mean flexible or double jointed. I didn't know it could be so extreme as to be a disability. I also didn't know my joints were weird tbh like no one has EVER pointed out to me that my joints go past where they're supposed to. LMAO I always get so upset cuz when I draw full body characters the legs always look weird and the reason is bc I draw their knees the way mine look. I've recently discovered it's not normal or healthy for your default standing position to be locked knees and that sucks bc locking my knees is what's comfortable to me now and bending them feels weird. I always thought my choir teacher was weird cuz he constantly told us before concerts not to lock your knees cuz you'll pass out and I was like "wtf is this man talking about that's just standing like does he want me to squat?" PEOPLE CAN ACTUALLY PASS OUT FROM LOCKING THEIR KNEES TOO LONG. How does that happen? My mom said she saw that happen to someone once that's so weird bodies are so weird sometimes. I've been trying my best to break the habit but it's tough. I hope that the doctor gives me word on the order sometime soon cuz I really wanna know if she's right like what am I supposed to do? It already took a while to adjust to the idea that I'm mentally disabled idrk how to accommodate a physical disability. Plus I've seen from other people's perspective how incredibly frustrating it is to be a young disabled person cuz so many people are super ignorant and think disabilities are only for old people and veterans. But like fuck those ppl I don't have to prove anything to them but like if it gets so bad I have to stop pole dancing that would genuinely be the worst. Idk why it got so bad out of nowhere like that's scary where the hell was the progression? Makes me worried it can get exponentially worse in the blink of an eye if I don't do things right.
Why are my bones straight up eroding
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